Early Diagnosis: Working with Families of Deaf Children

Presented in January 2006

Professor Alys Young

Newborn hearing screening – References and Bibliography

Publications from NHSP Evaluation 19 December 2005

Publications in peer-reviewed journals

1. Young A, Tattersall H, Uus K, Bamford J, McCracken W. Universal Newborn Hearing Screening: Issues in the design of a true cases study. Australian Journal of the Education of the Deaf, 2003, 9, 5-10.
2. Baker H, Marteau T, Uus K, Bamford J. Increasing knowledge about a screening test: preliminary evaluation of a structured, chart-based, screener presentation. Patient Education & Counselling, 2004, 52, 55-9.
3. Young A, Tattersall H, Uus K, Bamford J, McCracken W. To what extent do the characteristics of the object of evaluation influence the choice of epistemological framework? The case of universal newborn hearing screening. Qualitative Health Research, 2004, 14, 866-74.
4. Crockett R, Baker H, Uus K, Bamford J, Marteau TM. Maternal anxiety and satisfaction following infant hearing screening: a comparison of the health visitor distraction test and newborn hearing screening. Journal of Medical Screening, 2005, 12, 78-82.
5. Young A, Tattersall H, McCracken W, Bamford J. The impact of universal newborn hearing screening – education perceiving the role of social services. Qualitative Social Work, 2005, 3 (4), 367-87, 2004.
6. Bamford J, Uus K, Davis A. Screening for hearing loss in childhood: issues, evidence and current approaches. Journal of Medical Screening, 2005, 12, 119-24.
7. Uus K, Bamford J, Young A, McCracken W. Readiness of paediatric audiology services for newborn hearing screening: findings and implications from the programme in England. International Journal of Audiology 2005, 44, 712-20.
8. Young, AM, McCracken, W., Tattersall, H., Bamford, J. Interprofessional working in the context of newborn hearing screening: Education and Social Services compare challenges, Journal of Interprofessional Care, 2005, 19 (4), 386-95
9. Young A, Tattersall H. (2005) Parents’ evaluative accounts of the process and practice of universal newborn hearing screening. Journal of Deaf Studies and Deaf Education, 10 (2), 134-45.

Publications in peer-reviewed conference proceedings

1. Young, AM., Tattersall, H (2005) Evaluative accounts of the process and practice of screening – parents’ of true cases share their experiences. In RC Seewald, J Bamford (Eds) A Sound Foundation through Early Amplification 2004: Proceedings of the Third International Conference (chapter 13), Stafia, Switzerland: Phonak

Accepted for publication in a peer-reviewed journal

10. Uus K, Bamford J. Effectiveness of population-based newborn hearing screening in England: Ages of interventions for identified babies and profile of cases. In press: Pediatrics.
11. Ankjell H, Uus K, Bamford J, Marteau T. Why don't health professionals check patient understanding? A questionnaire-based study. In press: Patient Education & Counselling.
12. McCracken W, Young A, Tattersall H, Uus K & Bamford J. Very early audiological management: parental perspectives. In press: Ear & Hearing.
13. McCracken W, Young A, Tattersall H, Uus K, Bamford. The impact of the national Newborn Hearing Screening Programme on Educational Services in England. In press: Deafness and Education International
14. Crockett R, Wright A, Uus K, Bamford J, Marteau TM. Maternal anxiety following newborn hearing screening. In press: Journal of Medical Screening.
15. Tattersall H., Young, A.  Deaf children identified through Newborn Hearing Screening: Parents' experiences of the diagnostic process. In press: Child: Care, Health & Development

Submitted for publication in a peer-reviewed journal:

1. Uus K, Taylor R, & Bamford J. An analysis of the costs of the national implementation of Universal Newborn Hearing Screening in England. Submitted to Journal of Medical Screening.
2. Grill E, Uus K, Hessel F, Davies L, Taylor RS, Wasem J, Bamford J. Neonatal hearing screening: modelling cost and effectiveness of hospital- and community-based screening. Submitted to BMC Health Services Research.

In preparation for publication in a peer-reviewed journal:

1. Uus K, Young A, Crockett R, Marteau M & Bamford J. Hearing loss is not the most likely reason for referral by newborn hearing screen.’ True or false? Target: Ear & Hearing.
2. Bamford J, Uus K & Davis A. Evaluation of the performance of the first phase of National Health Service (NHS) Newborn Hearing Screening Programme in England Target: British Medical Journal.
3. Crockett R, Wright A, Uus K, Bamford J, Marteau TM. Evaluation of long-term maternal anxiety following newborn hearing screening. Target: International Journal of Audiology
4. Crockett R, Wright A, Uus K, Bamford J, Marteau TM. A comparison of anxiety between mothers of babies who had hospital-based screening and mothers of babies who had community-based newborn hearing screening. Target: Audiological Medicine
5. Crockett R, Baker H, Uus K, Bamford J, Marteau T. Job satisfaction in newborn hearing screeners: a comparison of hospital-based screeners and community-based health visitors. Target: Health Policy

The full evaluation report is referenced as (and will be available sometime in 2006):
Bamford, J, Ankjell, H, Crockett, R, Marteau, T, McCracken, W, Parker, D, Tattersall, H, Taylor, R, Uus, K, Young, A (2004) Report of the evaluation of the first phase of implementation of the NHSP. Report submitted to the Department of Health.

Publications relating to the ES Deafness materials and the evaluation study
Young AM, Jones, D, Starmer, C Sutherland, H (2005). Issues and dilemmas in the production of standard information for parents of young deaf children – Parents’ views.; Deafness and Education International, 7 (2), 63-76.

www.earlysupport.org.uk go to information for parents and the full text of the “Deafness” information materials is available on free download.

More general publications of relevance

Young, AM (2003) Parenting and Deaf Children - A psycho-social literature based framework. London: NDCS. (46 pages) available on free download from the NDCS website.

Young, AM (2003) Parenting and deaf children – report of the needs assessment study. London: NDCS. (114 pages). available on free download from the NDCS web

Gallaway, C, Young AM (2003) Deafness and Education in the UK: Research Perspectives. London: Whurr. (256 pages) ISBN 1 86156 369 8

The Early Support evaluation study is due to finish in March 2006. Publications will follow.

The Informed Choice study is due to report in April 2006. Guidelines are likely to be available from autumn 2006.