University of Edinburgh

Early Diagnosis: Supporting Parents to Support their Child

Presented on Thursday 9 November 2006

The Early Support Team How this works in Fife

Susan Martin

Prior to UNHS Implementation

  • multi-disciplinary meetings
  • location of screen
  • who would carry out the screen
  • type of test to be used
  • demonstrations of equipment
  • appointment of co-ordinator
  • training of screeners/health visitors
  • care pathways drawn up

Since UNHS Implementation

  • Early Support Team
  • Care Pathways
  • Changes to practices/procedures
  • Children diagnosed with a hearing loss
  • Resources used/Early Support Materials
  • Issues for the future

Early Support Team

  • Associate Specialist – Child Health/Audiology
  • Head of Audiology Department
  • UNHS Co-ordinator
  • Educational Audiologist
  • Specialist Speech and Language Therapist
  • Teacher of the Deaf

Early Support Team

  • on-going discussions
  • diagnostic assessments
  • breaking the news – where, when, by whom?
  • information given to families
  • weekly meetings

Care Pathways

care pathways

Changes to practice/procedures

  • liaison with pilot site teams
  • referral procedures
  • paperwork – files, records and reports
  • purpose/frequency of visits to families

Children diagnosed with a hearing loss

2 profoundly deaf
4 moderate/severe
1 unilateral loss
Support is being provided to these families by the Educational Audiologist/Teacher of the Deaf

Support is also being provided to the families of two children diagnosed outwith Fife
1 unilateral loss
1 auditory neuropathy

Issues for the Future

  • On-going Teacher of the Deaf support - 0-2yrs/0-3yrs?
  • Ensuring all Teachers of the Deaf have the appropriate skills
  • Cochlear implants

Early Support Materials

DfES Publications

Early Support Materials

  • Professional Guidance
  • Information for Parents booklets
  • Family File
  • Background Information File
  • Monitoring Protocol for Deaf Babies and Children (How to use this protocol)
  • Monitoring Protocol for Deaf Babies and Children : Level 2 Materials
  • Development cards for parents
  • Service Audit Tool

Information for Parents booklets

  • Autistic spectrum disorders
  • Cerebral palsy
  • Deafness
  • Down’s syndrome
  • Learning disabilities
  • If your child has a rare condition
  • Multi-sensory impairment
  • Speech and language difficulties
  • Visual impairment
  • When your child has no diagnosis

Information for Parents Deafness

  • Early days
  • Who will you meet?
  • Your child’s deafness : audiology
  • Hearing aids and cochlear implants
  • Communication and language choices
  • Parenting and childcare
  • Education and your deaf child
  • Benefits and financial support
  • Equipment for home and school
  • Useful organisations

Family File

  • Introducing ourselves
  • List of professionals working with us
  • Record of professional contacts
  • Family Service Plan
  • What our child can do now
  • Current records
  • Local organisations and contacts

Background Information File

  • Introduction
  • People you may meet
  • Childcare
  • Financial Help
  • Education
  • Health services
  • Social services
  • Statutory Assessment – Education
  • Glossary
  • Useful contacts and organisations

Monitoring Protocol for Deaf Babies and Children

  • tracks development and progress over first three years or so after identification of a hearing loss
  • recognises the important information that families have to share about their child
  • enables professionals and families to share their observations
  • provides a record for families of their child’s achievements, progress and development
  • helps everyone to be clear about the significance of what a child is now able to do, what the child will go on to do next and how this can be supported

Monitoring Protocol for Deaf Babies and Children

  • Communication
  • Attending, listening and vocalisation
  • Social-emotional development
  • Other development milestones
  • Play