The materials on this list are available from
the SSC Library.
Please contact the Resource Library Manager for more information.

Bibliography - Early Intervention

Books

Adams, John W
You and your deaf child: a self-help guide for parents of deaf and hard of hearing children
Clerc Books (Gallaudet), 1997
ISBN: 1563680602
A guide for parents to improve the behaviour of their deaf children through understanding the child's frustrations and strategies for dealing with them.

Baker, Colin
Parents' and teachers' guide to bilingualism
Multilingual Matters, 1995
ISBN: 1853592641

Carpenter, Barry (Ed)
Families in context: emerging trends in family support and early intervention
David Fulton, 1997
ISBN: 1853464899

Chamba, Rampaul; Ahmad, Waqar; Jones, Lesley
Improving services for Asian deaf children: parents' and professionals' perspectives
Policy / Joseph Rowntree Foundation, 1998
ISBN: 1861341296

Contact a Family
Contact a Family directory: specific conditions, rare disorders and UK family support groups: 2004 edition
Contact a Family, 2004
ISBN: 1874715580
Index of medical conditions with information on relevant support groups.
Website: http://www.cafamily.org.uk/

Corker, Mairian
Deaf transitions: images and origins of deaf families, deaf communities and deaf identities
Jessica Kingsley, 1996
ISBN: 1853023264

Deaf Education through Listening and Talking (DELTA)
Deaf children talking: parents' guide to speech, language and learning for deaf children: the natural aural approach
DELTA, [1999]

Densham, Jennifer
Deafness, children and the family: a guide to professional practice
Arena, 1995
ISBN: 185742221X

Department for Education and Skills (DfES)
Developing early intervention/support services for deaf children and their families
Dept for Education and Skills, 2003
ISBN: 1841859079

Department for Education and Skills (DfES)
Early support service audit tool for supporting the development and improvement of services for disabled children 0-3 years and their families
Dept for Education and Skills, 2004
Includes: How to use the service audit tool. ESPP34, ESPP35
http://www.earlysupport.org.uk/Default.aspx?tabid=162

Department for Education and Skills (DfES)
Information for parents: deafness [Early Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for families who have very young children who are deaf.
ESPP11

Department for Education and Skills (DfES)
Information for parents: multi-sensory impairment [Early Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for families who have very young children who have multi-sensory  impairments or who are deafblind.
ESPP9.

Department for Education and Skills (DfES)
Informed choice, families and deaf children: professional handbook
Dept for Education and Skills, 2006
A handbook for professionals to provide an "Informed Choice" approach for families who have very young children who are deaf.
ESPP11

Department for Education and Skills (DfES)
Professional guidance [Early Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for professionals working with families who have very young children with disabilities.
ESPP33
http://www.earlysupport.org.uk/Default.aspx?tabid=160

Ennals, Paul
Together from the start: practical guidance for professionals working with disabled children (birth to third birthday) and their families
Dept for Education and Skills, 2003
ISBN: 1841859060
link

Enquire
Guide for parents: the Additional Support for Learning act
Scottish Executive, 2004
Brief guide to the Additional Support for Learning act
http://www.scotland.gov.uk/library5/education/esa04gp-00.asp

Enquire
Parents' guide to additional support for learning
Scottish Executive, 2005
ISBN: 1901589676
Explains the Education (Additional Support for Learning) (Scotland) Act and details procedures and advice for parents.
http://www.enquire.org.uk/enquire/pdf/parents-guide-to-asl-2006-01.pdf

Gregory, Susan
Deaf children and their families
Cambridge U P, 1995
ISBN: 0521438470

Gregory, Susan ... [et al]
Education of deaf pupils: perspective of parents, teachers and deaf adults
RNID, 2001
ISBN: 0900634871
A supplement to "A review of good practice in deaf education"

Grimes, Marian
Moving through: stages of the educational journey for deaf children and young people in North Ayrshire: a parent/carer guide
Scottish Sensory Centre, 2005
ISBN: 0954603613
A guide for parents on the various stages their deaf child will encounter during their time at school and directly after.  Based on the experience at North Ayrshire but may be generally applicable in Scotland.
http://www.ssc.education.ed.ac.uk/resources/deaf/moving.html

Hornby, Garry
Working with parents of children with special needs
Cassell, 1995
ISBN: 030432857X
Series: Special Needs in Ordinary Schools

Knight, Pamela & Swanwick, Ruth
Care and education of a deaf child: a book for parents
Multilingual Matters, 1999
ISBN: 185359458X
Series: Parents and teachers' guides; No 4

Kurtzer-White, Ellen & Luterman, David
Early childhood deafness
York Press, 2001
ISBN: 0912752610
This book offers a thorough overview of paediatric audiology and provides direction for best practice intervention.

Learning and Teaching Scotland
Birth to three: supporting our youngest children
LT Scotland, 2005
ISBN: 184399061X
General guide for parents of young children and professionals who work with young children.

Luterman, David M & Ross, Mark
When your child is deaf: a guide for parents
York Press, 1991
ISBN: 0912752270

Lynas, Wendy
Communication options in the education of deaf children
Whurr, 1994
ISBN: 1897635419

McCracken, W & Sutherland, H
Deaf-ability not disability: a guide for parents of hearing impaired children
Multilingual Matters, 1991
ISBN: 1853590800
A broad guide to deafness for parents covering medical issues, educational and communication options. Part 2 of the book contains case studies of deaf children and their families told from various points of view.

Meadow-Orlans, Kathryn P; Mertens, Donna M; Sass-Lehrer, Marilyn A
Parents and their deaf children: the early years
Gallaudet University Press, 2003
ISBN: 1563681374
Deaf children and their parents' experiences of early intervention services.  A US survey of parents of 6-7 year old deaf children which was followed up with interviews with 80 parents.

Meadow-Orlans, Kathryn P; Spencer, Patricia Elizabeth; Koester, Lynne Sanford
World of deaf infants: a longitudinal study
Oxford University Press, 2004
ISBN: 0195147901
Reports on a 15 year study of families with deaf and hearing young children of deaf or hearing parents.  Explores the parenting of children with special needs and the interaction between parent and infant.

Minority Ethnic Learning Disabilities Initiative (MELDI)
Empowering minority ethnic families of disabled children: a guide and resource bank for bilingual key workers (Family matters: Working together project)
MELD Initiative, 2002
Accompanied by a CD-ROM.

Morgan-Jones, Ruth A
Hearing differently: the impact of hearing impairment on family life
Whurr, 2001
ISBN: 1861561776
Looks at relationships between hearing and deaf people, between partners, within families and in wider society. Includes data from 150 in-depth interviews with deaf people.

National Deaf Children's Society (NDCS)
Bone anchored hearing aids for children and young people: a guide for parents and families
NDCS, 2005
Brief guide to bone anchored hearing aids (BAHA) for families.

Orphan, Alison
Moving on: supporting parents of children with SEN
David Fulton, 2004
ISBN: 1843121131

Roush, Jackson & Matkin, Noel D (Eds)
Infants and toddlers with hearing loss: family-centered assessment and intervention
York Press, 1994
ISBN: 0912752289

Royal National Institute for Deaf People (RNID)
Effective early intervention for deaf children 0-5 and their families: education guidelines project
RNID, 2001
ISBN: 0900634839
Series: Education guidelines project

Schwartz, Sue (ed)
Choices in deafness: a parents' guide to communication options (2nd ed)
Woodbine House, 1996
ISBN: 0933149859
Outlines some communication options and contains many personal stories of parents' and children's experiences learning to communicate.

Spencer, Patricia E; Erting, Carol J; Marschark, Marc
Deaf child in the family and at school: essays in honor of Kathryn P Meadow-Orlans
Lawrence Erlbaum Associates, 2000
ISBN: 0805832211

Stewart, David A & Luetke-Stahlman, Barbara
Signing family: what every parent should know about sign communication
Clerc Books (Gallaudet), 1998
ISBN: 15636806906
Explores the use of all types signing as the means of communication with deaf children both within the family and beyond.

Sutherland, Hilary & Hall, Anne-Marie
Deaf friendly nurseries and pre-schools: a guide for people working with deaf children in early education settings
NDCS, 2003
ISBN: 0904691640
Aimed at people who work with pre-school aged children who are deaf.

University of Bristol. Centre for Deaf Studies
Deaf children developing sign: a guide for parents and teachers
Centre for Deaf Studies, University of Bristol, 1998
Final report from research funded by the Leverhulme Trust (Grant F.182).

Young, Alys ... [et al]
Early support: an evaluation of phase 3 of early support
University of Manchester, 2006
ISBN: 978 1844788125
A report on the effectiveness of the Early Support programme. Research report 798
http://www.dfes.gov.uk/research/data/uploadfiles/RR798.pdf

Young, Alys; Griggs, Mary; Sutherland, Hilary
Deaf child and family intervention services using deaf adult role models: a national survey of development, practice and progress
RNID, 2000
ISBN: 0900634782
Research into employing deaf adults as positive role models for projects involved in providing services to deaf children and their families.

Videos & CD-ROMs

Lee, Carol
Video phrase book for parents
Sign Language Video People, 1996
Duration 30 minutes.  Provides phrases in BSL which parents may need to use with young deaf children during a typical day, grouped under headings such as breakfast time, going to the shops, etc.

National Deaf Children's Society (NDCS)
Parenting a deaf child (CD-ROM)
NDCS, 2004
Parents share practical advice on various issues about bringing up a deaf child.

Journal Articles

Hintermair, Manfred
Parental resources, parental stress and socioemotional development of deaf and hard of hearing children
Journal of Deaf Studies and Deaf Education
Fall 2006, Vol 11 (4), p493-513
A study of the links between the stress experienced by parents and the emotional and social problems of their deaf children.

Hintermair, Manfred
Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children?
Journal of Deaf Studies and Deaf Education
Winter 2004, Vol 9 (1), p15-26
Looks at the general well-being of the mothers of children with hearing impairment.

Hyde, Merv & Power, Des
Some ethical dimensions of cochlear implantation for deaf children and their families
Journal of Deaf Studies and Deaf Education
Winter 2006, Vol 11 (1), p102-111
Looks at the range of information given to parents of newly identified deaf children on their future possibilities.  This is particularly relevant with the advent of widely accessible cochlear implant programs.

Loots, Gerrit; Devisé, Isabel; Jacquet, Wolfgang
Impact of visual communication on the intersubjective development of early parent-child interaction with 18 to 24 month old deaf toddlers
Journal of Deaf Studies and Deaf Education
Fall 2005, Vol 10 (4), p357-375
Study of the varying communication styles used between hearing and deaf parents and their deaf children.

Nunes, Terezinha; Pretzlik, Ursula; Ilicak, Selin
Validation of a parent outcome questionnaire from pediatric cochlear implantation
Journal of Deaf Studies and Deaf Education
Fall 2005, Vol 10 (4), p330-356
Analysis of a questionnaire devised for parents to complete following their child receiving a cochlear implant.

Torres, Santiago; Moreno-Torres, Ignacio; Santana, Rafael
Quantitative and qualitative evaluation of linguistic input support to a prelingually deaf child with cued speech: a case study
Journal of Deaf Studies and Deaf Education
Fall 2006, Vol 11 (4), p438-448
A study of one young deaf child's experiences of cued speech.

Wallis, Delia; Musselman, Carol; MacKay, Sherri
Hearing mothers and their deaf children: the relationship between early, ongoing mode match and subsequent mental health functioning in adolescence
Journal of Deaf Studies and Deaf Education
Winter 2004, Vol 9 (1), p2-14
Explores the impact of communication choices on the mental health of deaf adolescents.

Young, Alys
Factors affecting communication choice in the first year of life: assessing and understanding an ongoing experience
Deafness and Education International
2002, Vol 4 (1), p2-11
Originally an address given at an NDCS conference.  Looks at the idea of communication choice for families, the influence of professionals around them and how this ongoing process works.

Young, Alys ... [et al]
Informed choice and deaf children: underpinning concepts and enduring challenges
Journal of Deaf Studies and Deaf Education
Summer 2006, Vol 11 (3), p322-336
A report on the first stage of a study about informed choices for parents of deaf children.

Young, Alys ... [et al]
Issues and dilemmas in the production of standard information for parents of young deaf children: parents' views
Deafness and Education International
2005, Vol 7 (2), p63-76
Explores the provision of good information to parents of children who are deaf looking specifically at a draft document devised by NDCS for the Early Support Pilot programme.

Young, Alys & Tattersall, Helen
Parents' of deaf children evaluative accounts of the process and practice of universal newborn hearing screening
Journal of Deaf Studies and Deaf Education
Spring 2005 Vol 10 (2), p134-145
Study of parents’ perceptions of the universal newborn hearing screening procedure.  Parents interviewed had babies who were identified as having a hearing loss during the screening process.