University of Edinburgh
 

The materials on this list are available from

Bibliography - Informed Choice

Books

Beazley, Sarah & Moore, Michele
Deaf children, their families and professionals: dismantling barriers
David Fulton, 1995
ISBN: 185346354X
Explores the social model of disability as it affects the families of deaf children and the barriers they face in everyday life.

Department for Education and Skills (DfES)
Information for parents: multi-sensory impairment [Early Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for families who have very young children who have multi-sensory impairments or who are deafblind. ESPP9.
http://www.earlysupport.org.uk/

Department for Education and Skills (DfES)
Informed choice, families and deaf children: professional handbook
Dept for Education and Skills, 2006
A handbook for professionals to provide an "Informed Choice" approach for families who have very young children who are deaf. ESPP11
http://www.earlysupport.org.uk/

Harrigan, Suzanne & Sheridan, Clare
Small talk: a package for families with a new deaf baby (2nd ed)
Ear Foundation, 2007
Informs and reassures families about communication at a time when they may be struggling to come to terms with the discovery that their baby is deaf. Includes DVD, booklet, fridge notes and discussion sheets.

Knight, Pamela & Swanwick, Ruth
Care and education of a deaf child: a book for parents
Multilingual Matters, 1999
ISBN: 185359458X
Aims to give parents clear accessible and full information on a variety of aspects of deafness so that they can make informed decisions. Series: Parents and teachers' guides; No 4

Meadow-Orlans, Kathryn P; Spencer, Patricia Elizabeth; Koester, Lynne Sanford
World of deaf infants: a longitudinal study
Oxford University Press, 2004
ISBN: 0195147901
Reports on a 15 year study of families with deaf and hearing young children of deaf or hearing parents. Explores the parenting of children with special needs and the interaction between parent and infant.

National Deaf Children's Society (NDCS)
Parenting a deaf child: parenting tips
NDCS, 2005
Parents share practical advice on various issues about bringing up a deaf child.

Schwartz, Sue (ed)
Choices in deafness: a parents' guide to communication options (2nd ed)
Woodbine House, 1996
ISBN: 0933149859
Outlines some communication options and contains many personal stories of parents' and children's experiences learning to communicate.

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CD-ROMs

National Deaf Children's Society (NDCS)
Parenting a deaf child
NDCS, 2004
Parents share practical advice on various issues about bringing up a deaf child.

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Articles

Archbold, Sue M ... [et al]
Outcomes from cochlear implantation for child and family: parental perspectives
Deafness and Education International 2008, Vol 10 (3), p120-142
Parents of 101 children who had received cochlear implants were surveyed to discover how well the parents felt the implants had helped their children.  This article reports the findings from the responses.

Brown, P Margaret & Remine, Maria D
Flexibility of programme delivery in providing effective family-centred intervention for remote families
Deafness and Education International 2008, Vol 10 (4), p213-225
Study of professionals and families involved in family-centred support and how the quality and equity of service is affected by this approach.

Ingber, Sara & Dromi, Esther
Demographics affecting parental expectations from early deaf intervention
Deafness and Education International 2009, Vol 11 (2), p83-111
Looks at the characteristics of the mothers of deaf children in relation to their expectations for early intervention.

Loots, Gerrit; Devisé, Isabel; Jacquet, Wolfgang
Impact of visual communication on the intersubjective development of early parent-child interaction with 18 to 24 month old deaf toddlers
Journal of Deaf Studies and Deaf Education Fall 2005, Vol 10 (4), p357-375
Study of the varying communication styles used between hearing and deaf parents and their deaf children.
http://jdsde.oxfordjournals.org/

Moore, Jo
When you know you're right
NDCS Magazine Winter/Spring 2007, No 4, p18-21
The story of one family's experience of making educational choices for their daughter who is deaf and has multiple disabilities.

Porter, Ann & Edirippulige, Sisira
Parents of deaf children seeking hearing loss-related information on the internet: the Australian experience
Journal of Deaf Studies and Deaf Education Fall 2007, Vol 12 (4), p518-529
A study of the ways in which parents of deaf children use the internet to gather information on deafness.
http://jdsde.oxfordjournals.org/

Sutherland, Jane; Remine, Maria D; Brown, P Margaret
Parent and professional perspectives on the Western Australian infant hearing screening program
Deafness and Education International 2008, Vol 10 (3), p168-188
Views from parents and professionals on the effectiveness of the screening process and the subsequent services provided.

van Unen, Aleida
Parents' choice for cochlear implants and biculturalism
Deaf Worlds 2007, Vol 23 (2&3), pS161- S164
Hearing parents of a deaf child describe how they have tried to allow their child who has a cochlear implant to make the most of his hearing and his deafness by encouraging use of sign language in certain situations and part-time attendance at a deaf school.

Wallis, Delia; Musselman, Carol; MacKay, Sherri
Hearing mothers and their deaf children: the relationship between early, ongoing mode match and subsequent mental health functioning in adolescence
Journal of Deaf Studies and Deaf Education Winter 2004, Vol 9 (1), p2-14
Explores the impact of communication choices on the mental health of deaf adolescents.
http://jdsde.oxfordjournals.org/

Watson, Linda & Swanwick, Ruth
Parents' and teachers' views on deaf children's literacy at home: do they agree?
Deafness and Education International 2008, Vol 10 (1), p22-39
A study to investigate the views and beliefs of a group of parents of young deaf children and the teachers of the deaf who work with them.

Watson, Linda M; Hardie, Tim; Archbold, Sue M; Wheeler, Alexandra
Parents' views on changing communication after cochlear implantation
Journal of Deaf Studies and Deaf Education Winter 2008, Vol 13 (1), p104-116
A questionnaire was sent out to families of all children given a cochlear implant at a particular centre asking about communication choices and strategies since the cochlear implantation.
http://jdsde.oxfordjournals.org/

Young, Alys
Factors affecting communication choice in the first year of life: assessing and understanding an ongoing experience
Deafness and Education International 2002, Vol 4 (1), p2-11
Originally an address given at an NDCS conference.  Looks at the idea of communication choice for families, the influence of professionals around them and how this ongoing process works.

Young, Alys ... [et al]
Informed choice and deaf children: underpinning concepts and enduring challenges
Journal of Deaf Studies and Deaf Education Summer 2006, Vol 11 (3), p322-336
A report on the first stage of a study about informed choices for parents of deaf children.
http://jdsde.oxfordjournals.org/

Young, Alys ... [et al]
Issues and dilemmas in the production of standard information for parents of young deaf children: parents' views
Deafness and Education International 2005, Vol 7 (2), p63-76
Explores the provision of good information to parents of children who are deaf looking specifically at a draft document devised by NDCS for the Early Support Pilot programme.

Young, Alys & Tattersall, Helen
Parents' of deaf children evaluative accounts of the process and practice of universal newborn hearing screening
Journal of Deaf Studies and Deaf Education Spring 2005, Vol 10 (2), p134-145
Study of parents' perceptions of the universal newborn hearing screening procedure.  Parents interviewed had babies who were identified as having a hearing loss during the screening process.
http://jdsde.oxfordjournals.org/

Young, Alys & Tattersall, Helen
Universal newborn hearing screening and early identification of deafness: parents' responses to knowing early and their expectations of child communication development
Journal of Deaf Studies and Deaf Education Spring 2007, Vol 12 (2), p209-220
A study comprising of interviews with parents of children who were correctly diagnosed as Deaf during the first phase of the newborn hearing screening programme.
http://jdsde.oxfordjournals.org/

Young, Alys; Gascon-Ramos, Maria; Campbell, Malcolm; Bamford, John
Design and validation of a parent-report questionnaire for assessing the characteristics and quality of early intervention over time
Journal of Deaf Studies and Deaf Education Fall 2009, Vol 14 (4), p422-435
Results from a questionnaire to parents on the quality of multiprofessional early intervention following identification of deafness in young children.
http://jdsde.oxfordjournals.org/

Zaidman-Zait, Anat
Parenting a child with a cochlear implant: a critical incident study
Journal of Deaf Studies and Deaf Education Spring 2007, Vol 12 (2), p221-241
A study of the experiences which helped parents of children who have received cochlear implants.
http://jdsde.oxfordjournals.org/