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Bibliography - Independent Living

Working with parents

Dodds Allan
Rehabilitating blind and visually impaired people: a psychological approach
Chapman & Hall, 1993
0412469707

Loumiet Robin & Levack, Nancy
Independent living: a curriculum with adaptations for students with visual impairments: Volume II:  Self-care and maintenance of personal environment (2nd ed)
Texas School for the Blind and Visually Impaired, 1993
1880366029

Ponchillia, Paul E & Ponchillia, Susan V
Foundations of rehabilitation teaching with persons who are blind or visually impaired
AFB, 1996
0891289399

Royal National Institute for the Blind (RNIB)
Kitchen sense: for people with impaired sight
RNIB, 1995
185878073X

Tuttle, Dean W
Self-esteem and adjusting with blindness: the process of responding to life's demands
Charles C Thomas, 1984
0398048878

Yeadon, Anne
Toward independence:  the use of instructional objectives in teaching daily living skills to the blind
AFB, 1974
0891280642

Articles

Chatterton, Joyce
Teaching daily living skills to visually impaired children
Visability
Autumn 1997, No 21, p5-7
Daily living skills are a vital element in the education of visually impaired children.  This article looks at the importance of their early introduction and a consistent approach for younger, primary age children.
http://www.rnib.org.uk/xpedio/groups/public/documents/Visugate/public_public_visarchive.hcsp

Venn, John J & Wadler, Frank
Maximizing the independence of deaf-blind teenagers
Journal of Visual Impairment & Blindness
Mar 1990, Vol 84, p103-108
Looks at a programme designed to improve the independence of teenagers with multiple disabilities and visual impairment or who are deafblind.

Working with Parents (VI)

Books

Blind Childrens Center
Heart to heart: parents of blind and partially sighted children talk about their feelings
Blind Children's Center, n.d.

Bowman, Richard; Bowman, Ruth; Dutton, Gordon
Disorders of vision in children: a guide for teachers and carers
RNIB, 2001
ISBN 1858782139
Explains how disorders of visual function can impair visual performance under different circumstances and allows readers to determine how best to devise educational strategies.

Brambring, Michael
Lessons with a child who is blind: development and early intervention in the first years of life
Blind Children's Fund, 1998
Presents an account of one family's experiences in rearing their daughter Christina who is congenitally blind.

Brennan, Mary
Show me how: a manual for parents of preschool visually impaired and blind children
AFB, 1982
ISBN 0891281134
AFB practice report. 

Brown, Sheila M
From early days to optimism: a book of support and advice for new parents of children with Albinism
Albino Fellowship, 1999
A parent's experiences of bringing up a child with the rare hereditary condition Albinism.

Bull, Margaret
Getting it all together: a guide for parents of babies who have other disabilities as well as very limited vision
RVIB, 1987
ISBN 0949390089

Buultjens, Marianna; Stead, Joan; Dallas, Mary
Promoting social inclusion of pupils with visual impairment in mainstream schools in Scotland
Scottish Sensory Centre, 2002
Report of the project funded by the Scottish Executive.  The aims of the project were to to identify the range of school based strategies and initiatives that promote social inclusion and describe the social experiences of pupils with a visual impairment.

Clunies-Ross, Louise ... [et al]
Look and touch: play activities and toys for children with visual impairment
RNIB, 1987
Focuses on different play activities, describing how children of different ages & with various eye conditions can be encouraged to develop through play.  Includes info on specialist & non-specialist toys useful for VI children.

Cole-Hamilton, Issy & Vale, Dan
Shaping the future: the experiences of blind and partially sighted children in the UK: summary report
RNIB, 2000
ISBN 1858784492
Results from the biggest survey of blind and partially sighted children and young people ever to have been conducted in the UK.

Dale, F Jim
Useful information for parents of children with impaired vision
ILEA, 1980
Basic information for parents of children with newly diagnosed visual impairments.

Department for Education and Skills (DfES)
Information for parents: visual impairment [Early Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for families who have very young children who are visually impaired. ESPP8.

Dominguez, Betty & Dominguez, Joe
Building blocks: foundations for learning for young blind and visually impaired children
AFB, 1991
ISBN 0891281878
An English-Spanish book focusing on activities & materials that make up programs emphasizing learning through fun for children with visual impairments.

Enquire
Parents' guide to additional support for learning
Scottish Executive, 2005
ISBN 1901589676
Explains the Education (Additional Support for Learning) (Scotland) Act and details procedures and advice for parents.

Everett Dominic & Ravenscroft, John
Parent guide to mainstream visual impairment education in Scotland
VI Scotland, 2004
ISBN 0954608119
Provides information to parents on how children with visual impairments are educated in mainstream schools in Scotland

Everett, Dominic; Ravenscroft, John; Spowart, Katherine
Moving through: what parent/carers should know about the educational transition process for visually impaired young people in Scotland
VI Scotland, 2005
ISBN 0954608127
A guide to the transitions that a visually impaired child will make from joining nursery through to leaving school for tertiary education and work.

Ferrell, Kay Alicyn
Reach out and teach: parent handbook
AFB, 1985
ISBN 0891281274
Meeting the training needs of parents of visually and multiply handicapped young children.

Fielder, Alistair R; Best, Anthony B; Bax, Martin C O (Eds)
Management of visual impairment in childhood
Cambridge University Press, 1993
ISBN 0521451507
A practical & theoretical guide aimed at all who are involved in the day-to-day management of children with VI.

Fullwood, Deborah
Start to independence for your visually impaired child
RVIB, 1988
ISBN 0949390003 RVIB Burwood Educational Series No 1.

Fullwood, Deborah & Cronin, Peter
Facing the crowd: managing other people's insensitivities to your disabled child
RVIB, 1986
ISBN 0949390062

Fullwood, Deborah; Harvey, Laine; White, Glen
Living and learning: a guide for parents and educators of young visually impaired children who have additional disabilities
RVIB, 1991
ISBN 0949390907

Glasgow & West of Scotland Society for the Blind
Growing together: a handbook for the parents of visually impaired children
GWSSB, 1996

Gold, Deborah
Finding a new path: guidance for parents of young children who are visually impaired or blind
Canadian National Institute for the Blind, 2002
ISBN 0921122381
Intended as a tool for parents to help them gain confidence in raising a child who has a visual impairment and as such covers all the main areas that parents will encounter including coping with the diagnosis, dealing with families and friends, child development and education.

Gringhuis, Diety; Moonen, Jo; van Woudenberg, Paula
Children with partial sight: development, parenting, education and support
Bartiméus, 2002
ISBN 9071534413

Harris, Christopher
Early-onset nystagmus: a parent's guide
Nystagmus Network, 1998
ISBN 1898081255

Harrison, Felicity & Crow, Mary
Living and learning with blind children
University of Toronto Press, 1993
ISBN 0802077005
A guide for parents and teachers of visually impaired children.

Haughton, Liz & Mackevicius, Sandie
I'm posting the pebbles: active learning through play for children who are blind or vision impaired
RVIB, 2001
ISBN 0949390585
Different types of play & activities are examined and suggested for good learning opportunities for children who have visual impairments.

Holbrook, M Cay
Children with visual impairments: a parents' guide
Woodbine House, 1995
ISBN 0933149360

Lear, Roma
Look at it this way: toys and activities for children with a visual impairment
Butterworth-Heinemann, 1998
ISBN 0750638958
Series: Play can help

Leonhardt, Merce
Being parents to a blind or severely visually impaired child
ICEVI, nd
Illustrated with text in Spanish as well as English.  Includes discussion points in English.

Lindstedt, Eva
How well does a child see?  a guide on vision and vision assessment in children (2nd ed)
ELISYN, 1997
ISBN 9187062046

Mason, Heather L
Guidelines for teachers and parents of young people with a visual impairment using low vision aids (LVAs)
University of Birmingham, 1998
Part of Heather Mason's pack on Low Vision Aids.

McDonald, Mary
Setting out: practical ideas for parents of children with sight problems
RNIB, 2002
ISBN 1858785286
Guide for parents about creating a loving and stimulating environment for children with sight problems.

McDonald, Mary
Which way? A guide for parents of children with multiple disabilities
RNIB, 2003
ISBN 1858785278
Part of the RNIB's Early years series of publications focusing on the more complex issues that can arise for children with sight problems who have other special needs.

Nielsen, Lilli
Educational approaches for visually impaired children
SIKON, 1992
ISBN 8750395688
Designed for teachers, psychologists, parents, pre-school teachers and others who are involved in caring for visually impaired children.

Nielsen, Lilli
Space and self: active learning by means of the Little Room (2nd ed)
SIKON, 2003
ISBN 8775462060
Designed for teachers, parents, psychologists and others who in some way are involved in caring for multiply disabled children.

Nixon, Howard L II
Mainstreaming and the American dream
AFB, 1991
ISBN 0891281916
Sociological perspectives on parental coping with blind and visually impaired children.

Pogrund, Rona L & Fazzi, Diane L
Early focus: working with young children who are blind or visually impaired and their families (2nd ed)
AFB, 2002
ISBN 0891288562

Raynor, Sherry & Drouillard, Richard
Get a wiggle on: a guide for helping visually impaired children grow (2nd ed)
Blind Children's Fund, 1996
This booklet has been prepared to assist those persons who are in contact with blind or visually impaired infants.  It contains suggestions which will be helpful in assisting these children, early in their lives, to grow and learn like other children.

Raynor, Sherry & Drouillard, Richard
Move it!!!: a guide for helping visually impaired children grow (2nd ed)
Blind Children's Fund, 1997
A sequel to "Get a wiggle on." RN 3216

Royal National Institute for the Blind (RNIB)
Finding out about blindness
RNIB, 1998
This pack is based on Anna as seen in "Anna's story" RN 235. It's full of ideas, games and useful information on serious sight problems.  For children aged 7-11.

Royal National Institute for the Blind (RNIB)
Guidelines for teachers and parents of visually handicapped children with additional handicaps
RNIB, n.d.
Guidance for teachers in special schools who are teaching children with multiple disabilities and visual impairment (MDVI)

Royal National Institute for the Blind (RNIB)
Making your voice heard : a guide for parents to the Record of Needs in Scotland
RNIB, 1994

Royal National Institute for the Blind (RNIB)
One step at a time
RNIB, 1995 ISBN 1858780691
Aims to help parents whose baby has been born with a visual impairment by offering practical information and advice as their baby develops.

Royal National Institute for the Blind (RNIB)
Taking the time: telling parents their child is blind or partially sighted
RNIB, 1996
Report of the RNIB Parent Support Study investigating parents' experiences of the help & support they received when learning that their child was visually impaired.

Royal National Institute for the Blind (RNIB)
What families need now: a report of the needs of families with visually impaired children in Scotland
RNIB, 1996 ISBN 1858781116
The findings of a small-scale Scottish survey to establish the extent to which parents of children with VI and VI with multi-disability obtained support & services when needed.

Royal National Institute for the Blind (RNIB)
Your first steps: a guide for parents of children with sight problems
RNIB, 2002
ISBN 185878526X
This books updates and combines two former RNIB early years publications: "Getting started" and "Help for you and your child"

Royal Victorian Institute for the Blind
Babies like me: a guide for parents of babies who have other disabilities as well as a vision impairment
RVIB, 2002
ISBN 0949390593
Adapted from "Getting it all together" by Margaret Bull

Scott, Eileen P; Jan, James E; Freeman, Roger D
Can't your child see: a guide for parents and professionals about young people who are visually impaired (3rd ed)
Pro-Ed, 1995
ISBN 0890796041

Sonksen, Patricia & Stiff, Blanche
Show me what my friends can see: a development guide for parents of babies with severely impaired sight and their professional advisors
Institute of Child Health, 1991
ISBN 095175260X
Sections covering different aspects of child development.  Stages of development are outlined for sighted children with strategies for encouraging development in visually impaired children.

Strathclyde Regional Council Education Resource Service
Information and advice for parents of visually impaired children
Strathclyde Regional Council, 1984
A general introduction to the education of visually impaired children for parents.

Visual Impairment Scotland
Where can you go from here? Scotland
VI Scotland, [2003]
Information for parents of children with visual impairments.

Videos

Enquire
Having your say at school: a video for secondary students who need extra support
Enquire, n.d.
Accompanied by teachers' notes.

Gringhuis, Diety; Lagerweij, Paul; Ijzerman, Jan
See you! a video on visual impairment and social development
Bartiméus, 2002
Duration 30mins. Accompanied by a leaflet. Based on images and stories, the video looks at the effects that a visual impairment can have on interaction with others. Aimed at parents, teachers and others involved in the upbringing of VI children

Articles

Autism and blindness: one mother's experience Focus, January 2006, Issue 43, p19-23
Anonymous account of a mother's struggle to deal with her daughter who has visual impairment and only recently diagnosed as autistic.

Annerborn, Lena & Gunnel, Franck
Competent parents, competent children
10th International Council for the Education of the Visually Impaired (ICEVI) World Conference, 3 - 10 August 1997, Sao Paulo, Brazil Section C - Parents/Family Involvement

Corn, Anne L
Providing access to the visual environment: a parent-professional partnership in promoting the use of optical devices
10th International Council for the Education of the Visually Impaired (ICEVI) World Conference, 3 - 10 August 1997, Sao Paulo, Brazil Section E: Low Vision

Evans, Sally
Albinism: the early years Visability Summer 2005, Issue 44, p5-8
A mother describes her experiences dealing with her 4 year old son who has oculo-cutaneous albinism.

Greedy, Sara
Overcoming hurdles Visability Autumn 2004, No 42, p31-32
Describes how the parents of a 10 month old child with albinism support and protect their child.

Holt, Marjorie & Holt, Simon
Excuse for success Visability Autumn 2005, Issue 45, p35-36
Marjorie and her son Simon share their success story on the completion of Simon's first year at University.

McConnell, John D
Parents as partners in career planning
10th International Council for the Education of the Visually Impaired (ICEVI) World Conference, 3 - 10 August 1997, Sao Paulo, Brazil Section C - Parents / Family involvement

Neal, Samantha
Katy and Specialeyes World
Insight Mar/Apr 2006, No 2, p44-46
Katy has cerebral palsy and CVI, her mum describes life with Katy and talks about her experience of working with organisations for parents of children with disabilities.

Rhodes, Lynda
Sharing Angharad's story (Peter's anomaly)
Visability Summer 2005, Issue 44, p13-15
A mother discusses the value of talking openly about her daughter's disabilities. (Peter's anomaly)

Towson, Jayne & Towson, Cliff
Life, teenagers and Stickler syndrome Visability Summer 2005, Issue 44, p18-20
The story of a family of three brothers all with the rare condition Stickler Syndrome.  The parents (also visually impaired) describe overcoming the difficulties.

van Dijck, Twan
Parents are satisfied but still ...
10th International Council for the Education of the Visually Impaired (ICEVI) World Conference, 3 - 10 August 1997, Sao Paulo, Brazil Section C - Parents/Family Involvement

Yaksat, Bulus L & Hill, Kathryn E
Strategies for involving parents of visually impaired children, professionals and the wider community as partners in achieving full access to education for these children
10th International Council for the Education of the Visually Impaired (ICEVI) World Conference, 3 - 10 August 1997, Sao Paulo, Brazil Section C - Parent / Family involvement