University of Edinburgh
 

Cerebral Palsy and Visual Impairment in Children: Experience of Collaborative Practice in Scotland

Preface

Moving Forward

Marianna Buultjens and Heather McLean

In November 2000, the Scottish Sensory Centre and Bobath Children's Therapy Centre Scotland organised a workshop on ïCerebral Palsy and Visual ImpairmentÍ (CPVI). The aim was to encourage discussion on and sharing of knowledge and strategies on this topic in order to benefit children with CPVI and their families. A group of professionals from many backgrounds volunteered to take forward the aims of the workshop and became known as the 'Working Group on CPV'.

How to share knowledge and "know-how" with each other and with parents in a language free of professional jargon was one of the challenges. As a result of discussion during the meetings of the group and writing for the group, a structure for a publication emerged. This was shared with a group of professionals and parents at a second workshop, where useful suggestions guided the future direction of the group.

At this point it was decided to invite additional ïwritersÍ to join in the process to complement the range of existing members. The result is this publication. In preparing it we all learnt a lot and we hope that by sharing the most up-to-date information on CPVI and collaborative practice in Scotland every child and young person with cerebral palsy and visual impairment in Scotland will benefit.

Acknowledgements

We would like to thank the Scottish Executive Education Department (SEED), who contributed financial support for this publication, including the funding of 500 copies to be distributed free of charge. The SEED are the main funders of the Scottish Sensory Centre, which hosted the meetings of the working group and organised the publishing of the document.

Thanks to Bobath Children's Therapy Centre Scotland for enabling Heather McLean to give time to this project and to the James & Grace Anderson Trust for contributing financial support for HeatherÍs time.

We are grateful to the Education Authorities, Schools, Health Boards, Hospital Trusts, which allowed their staff to take part in this worthwhile task and made it possible.

Thank you to Dr Lea Hyvärinen who has given us permission to include illustrations of her tests.

A big ïthank youÍ to those who gave their own time, especially parents and young people. Their collaboration and insights have enriched our document.

We are pleased to acknowledge the ongoing help from Helen Robertson, Sheila Mackenzie and the desktop publishing skills of Ruth Simpson used in preparing the document for publication. Also, thanks to Jean Campbell for proof-reading.

Dedication

Cerebral Palsy in Children: Experience of Collaborative Practice in Scotland is dedicated to all children with cerebral palsy and visual impairment in Scotland and their families.

CPVI Working Group

  • Dr Andrew Blaikie, Specialist Registrar in Ophthalmology, Ninewells Hospital, Dundee
  • Marianna Buultjens, Senior Lecturer/Co-ordinator, Scottish Sensory Centre, Moray House School of Education, the University of Edinburgh
  • Gillian Callander, Speech and Language Therapist, Yorkhill NHS Trust, Glasgow
  • Liz Colquhoun, Depute Headteacher, Kelvin School, Glasgow
  • Professor Gordon Dutton, Consultant Ophthalmologist, Yorkhill NHS Trust, Glasgow
  • Louise France, Visiting Teacher, Sensory Support Service, Glasgow
  • Shona Gillespie, Speech and Language Therapist, Yorkhill NHS Trust, Glasgow
  • Anne Harnden, Physiotherapist, Bobath ChildrenÍs Therapy Centre Scotland, Glasgow
  • Julie Inns, Visiting Teacher, VI Service, Windsor Park School, Falkirk
  • Mary Lee, Principal Teacher, Canaan Campus, Royal Blind School, Edinburgh
  • Dr Shän Lees, Staff Grade Paediatrician, Carnegie Clinic, Dunfermline
  • Lynn Lymer, VI Teacher, Visiting Teaching and Support Service, St Giles Centre, Edinburgh
  • Lindi MacWilliam, Principal Teacher (Retired), Independent Consultant, Royal Blind School, Edinburgh
  • Gillian McDaid, Team Head Occupational Therapist, Yorkhill NHS Trust, Glasgow
  • Heather McLean, Occupational Therapist, Bobath ChildrenÍs Therapy Centre Scotland, Glasgow
  • Dr Aisla Sinclair, Staff Grade Community Paediatrician, Forth Valley Primary Care NHS Trust
  • Janis Sugden, Teacher for VI, Clackmannanshire

Editors

  • Marianna Buultjens
  • Heather McLean

Invited Contributors

  • Linda Bain, Orientation & Mobility Specialist, Royal Blind School, Edinburgh
  • Fionna Balfour, Teacher, Royal Blind School, Edinburgh
  • Angie Bisson, Orientation & Mobility Specialist, Royal Blind School, Edinburgh
  • Eleanor Douglas, Speech and Language Therapist, Royal Blind School, Edinburgh
  • Dr Jean Halligan, Parent and Teacher
  • Mary Pullen, Orientation & Mobility Consultant, Kent
  • Nicola Tennant, Physiotherapist, Yorkhill NHS Trust & Broomlea School, Glasgow
  • Isobel Thomson, Social Worker, Social Work Services, Falkirk Council
  • Ruth Walker, Educational Psychologist, Midlothian Council Education Authority

Proof-reader

Jean Campbell