Teamwork with children with cerebral palsy and
visual
impairment: Towards a common language
Presented in November 2000
Identifying Thresholds for Education (Draft)
(with acknowledgements to Professor GN Dutton and Lea Hyvärinen, MD)
Introduction
In his paper "Impaired vision due to brain damage:
designing educational strategies" (Dutton, 2000) Gordon says that
"all educational material needs to be presented so that it is well
inside the thresholds for rapid, clear and simple
perception." He then lists the thresholds as follows:
A Basic thresholds of visual function
B The threshold for visual complexity (of both foreground and background)
C Temporal thresholds for presentation of information
D The proximity threshold for facial expression
E Specific thresholds matched to the focal brain disorder of the child.
In the search for a common language for thresholds for education, I will be addressing the main educator of the child. This person or persons, will change according to age and stage of child/pupil, (eg; parent, home visiting teacher, nursery teacher and staff, class teacher and her colleagues: classroom assistant, teacher of the VI). I am starting from the 'end' of the process. In other words, I am going to presume that certain 'team' assessments of vision have been done and that the main educator has access to the information from the assessment.
I have taken into account Gordon's five main thresholds, with their subdivisions.The thresholds are contained in suggestions addressed to the 'main' educator.
They are intended to enable that person to take account of the information from the team assessments to provide 'thresholds' for learning based on both the child's identified abilities and limitations.Rather than base these thresholds on curricular areas or skills, I will use Lea Hyvärinen's four main functional areas where vision plays an important role:
1 communication, both person to person, group and
distance communication;
2 orientation and mobility
3 activities and tasks of everyday life (ADL);
4 sustained near vision tasks, like reading and writing.
I will address the suggestions first of all to those working with infants and preschoolers. Then to those involved with school age pupils. Some suggestions will overlap the stages. From the suggestions made, team members should be able to identify which assessments have been done.My interpretation and approach to 'Identifying thresholds for education' is proposed as a first draft to be developed, adapted or totally replaced as a result of today's discussions.
Infants and Pre-school children
Communication
- Be near enough for the child to 'see' your face;
- Take into account whether the child child has central
vision and will have the possibility of 'eye contact' or whether the
child uses an area of vision outside thecentral field to look straight
ahead, and seems to look past when looking at a
person's face;
- Ask the medical team if the child needs correction
for near vision if there seems to be problems with focussing or long
sightedness (common in children with cerebral palsy);glasses can be
prescribed from 3-4 months or earlier;
- Speak slowly and if child doesn't have vision to
see lip movements, take the little hands to your mouth and throat;
- The child may not be able to recognise features,
though at this stage it may be too early to be able to verify this,
so remember to emphasise your voice, scent and other familiar physical
or cosmetic characteristics (beard, glasses, earrings).
- Let all other relatives, staff and children (brothers
and sisters or children in the nursery) know how to communicate with
the child;
- Remember to tell everyone not to startle the child by sudden touching or picking up without gentle prior warning and using the child's name.
- To encourage the child to explore near and eventually
more distant space, usetoys which reward the child through touch and
sound as well as being as visually attractive as possible;
- Use different sizes of toys and objects;
- Use information on the child's contrast sensitivity
to ensure appropriate contrast of toys and people against the background;
- Use safe, tried and tested methods such as the
'Little Room' and 'Resonance Board' for letting the child independently
explore the toys and the environment;
- Make sure the child's physio- and occupational therapists are involved for advice on positioning and movement.
Activities and tasks of everyday life (ADL)
- Always speak slowly and clearly and make sure the
child understand what you are saying on every occasion;
- Make the child familiar, with steps, kerbs, slopes,
through practice, and by highlighting edges;
- Let everyone concerned know if the child has difficulty
accommodating to lower light levels; make sure lighting is good where
the child has to go or has an adult companion; as the child gets older
he/she may be able to use a torch;
- Make sure that the child has always something by
which to recognise his/her parent or accompanying adult when in a crowd;
- Make sure the child feels safe and is looked after if going into a new place
Near Vision Tasks
- Always speak slowly and clearly and make sure the
child understand what you are saying on every occasion;
- Help the child develop tactile skills if difficulties
with directions of line and eye-hand co-ordination have been detected;
- Matching colours and shapes can be practised with
a view to using these skills in assessing visual acuity;
- Matching colours can be done without 'naming' the
colours; if there are problems with naming colours, associations can
be learnt from a young age, eg; sky blue, lemon yellow, grassy green;
- Adapt activities the child finds difficult to be
more attractive and fun:
- simplify pictures;
- encourage use of play do' and plasticene to
strengthen fingers;
- play colouring -in games;
- simplify pictures;
- Always let the child sit close enough at circle
time to see what is being discussed;
- Find videos and TV programmes which have slow and repetitive actions, words and songs; use the slow down control on your video-replay.
Children at School
Communication
- Always speak slowly and clearly until you are sure
the child understands what you are saying on every occasion;
- Always use the child's name when speaking to them
in the class or playground;
- Let all the other children know that they should
do this, too;
- Say who you are to the child who is blind or who
does not recognise people's faces;
- Explain this to the other children;Draft/SSC/Course
6:23.11.00Marianna Buultjens
If asking the children to work in groups, make sure they get into the habit of identifying themselves at the start eg "It's Keith here, and I've got a blue jersey on today."
- Learn with the rest of the class not to point and
say things like: "Look over there!" Fun language lessons could
involve practising how to be explicit in what we say instead of the
usual vagueness;
- Facial expressions and body language can be explored
as a class lesson so that all the children begin to recognise how we
express ourselves without words; make sure the pupil with visual impairment
can see close up and maybe in slow motion (video the actions?) what
is going on.
- For a blind child, make sure the actions can be felt and learnt and the sounds, eg; in-take of breath before speaking, can be heard
Orientation and Mobility
- Always speak slowly and clearly and make sure the
pupil understands what you are saying on every occasion;
- Remember that the pupil will only learn to use
information for orientation if he/she is responsible for the decisions
and actively involved in the movement; although a pupil might have been
pushed in a wheelchair over the same route for
years, it does not mean he/she 'knows' the route; whenever possible give the pupil the independence necessary to learn, by assisted walking or using an electric or 'smart' wheelchair;
- Make the pupil familiar with steps, kerbs, slopes
through practice and by highlighting edges;
- Let everyone concerned know if the pupil has difficulty
accommodating to lower light levels; make sure lighting is good where
the pupil has to go or has an adult companion; give the pupil a torch;
- Make sure that the pupil has always something by
which to recognise his/her parent, friends or accompanying adult when
in a crowd;
- Help the pupil to identify landmarks in school
and playground;
- colour coding: the orange stickers show the route to the canteen;
- language: learn the route as a poem or song;
specialist advice should be got from the teacher of the visually impaired and a mobility specialist;
- Make sure the pupil feels safe and is looked after
if going into a new place;
- Help the pupil identify ways of coping despite
loss of or inattention to a visual field;
- Remember that vision for movement is often preserved
in the 'inactive' visual field; use movement to get attention/awareness
of activity on the impaired side;
- When asking what a 3D object is or how big it is in comparison to another object, let the pupil feel the object if there seems to be a problem in identifying through sight alone;
- 2D diagrams and maps can also be made clearer for some pupils if they are made 'tactile'.
Activities and tasks of everyday
life (ADL)
- Discussions during topics relating to personal
and social development and also the daily diary or discussing weekends
and holidays may identify areas for attention in school;
- Self-help and independence skills related to cooking,
cleaning, washing and hygiene can be addressed during home economics;
- Social skills, dancing and other hobbies through
PE or clubs;
- Ensuring that the pupil has access to the same ICT equipment at home as in school will enable use of the internet as well as the possibility to do homework efficiently.
Near Vision Tasks
Early school years:
- Always speak slowly and clearly and make sure the
child understand what you are saying on every occasion;
- Help the child develop tactile skills if difficulties
with directions of line and eye-hand co-ordination have been detected;
- Matching skills for colours and shapes can be practised
with a view to using these skills in assessing visual acuity;
- Matching colours can be done without 'naming' the
colours; if there are problems with naming colours, associations can
be learnt from a young ag, eg; sky blue, lemon yellow, grassy green;
- Make activities the child finds difficult more
attractive and fun:
- simplify pictures;
- encourage use of play do and plasticene to
strengthen fingers;
- play colouring-in games;
- simplify pictures;
- Always let the child sit close enough at circle
time to see what is being discussed;
- Find videos and TV programmes which have slow and repetitive actions, words and songs; use the slow down control on your video-replay
All stages of school:
- Always speak slowly and clearly and make sure the
pupil understands what you are saying on every occasion;
Use of print for reading: make sure that the best size and style of print has been identified for the pupil, having taken into account:
- scotomas ('holes' in vision) and
- limitations in the visual field which might affect reading saccades (the measured jumps made by the eyes from one word to the next);
- print much larger than that of the smallest print
which the pupil can read, often helps overcome the problems;
- If the pupil has a loss to the right visual field,
reading may be helped by teaching the pupil to tilt the book; or a pupil
may hold the book upside down and read from right to left;
- If the pupil has a loss to the left visual field,
using a marker or finger at the start of the next line can help the
pupil find it and read fluently;
- Use of ICT: setting parameters for background/foreground,
mouse size, print size, style eg full page, or columns, or presentation
of one word at a time are all possible and can be set up to suit the
pupil; find out from the teacher of the visually impaired about this
and the following
- Specialist software for enlarging and reading out text may be supplied for some pupils if identified as appropriate.
The above approach to 'Identifying thresholds for education' is proposed as a first draft to be developed, adapted or totally replaced as a result of today's discussions.
Marianna Buultjens
