The materials on this list are available from
- the SSC Library.
- Please contact the Resource Library Manager for more information.
Bibliography - Informed Choice
Books
Beazley, Sarah & Moore, Michele
Deaf children, their families and professionals: dismantling
barriers
David Fulton, 1995
ISBN: 185346354X
Explores the social model of disability as it affects the families of deaf
children and the barriers they face in everyday life.
Department for Education and Skills (DfES)
Information for parents: multi-sensory impairment [Early
Support Pilot Programme]
Dept for Education and Skills, 2004
Guidance for families who have very young children who have multi-sensory
impairments or who are deafblind. ESPP9.
http://www.earlysupport.org.uk/
Department for Education and Skills (DfES)
Informed choice, families and deaf children: professional
handbook
Dept for Education and Skills, 2006
A handbook for professionals to provide an "Informed Choice" approach
for families who have very young children who are deaf. ESPP11
http://www.earlysupport.org.uk/
Harrigan, Suzanne & Sheridan, Clare
Small talk: a package for families with a new deaf baby
(2nd ed)
Ear Foundation, 2007
Informs and reassures families about communication at a time when they
may be struggling to come to terms with the discovery that their baby is
deaf. Includes DVD, booklet, fridge notes and discussion sheets.
Knight, Pamela & Swanwick, Ruth
Care and education of a deaf child: a book for parents
Multilingual Matters, 1999
ISBN: 185359458X
Aims to give parents clear accessible and full information on a variety
of aspects of deafness so that they can make informed decisions. Series:
Parents and teachers' guides; No 4
Meadow-Orlans, Kathryn P; Spencer, Patricia Elizabeth; Koester, Lynne
Sanford
World of deaf infants: a longitudinal study
Oxford University Press, 2004
ISBN: 0195147901
Reports on a 15 year study of families with deaf and hearing young children
of deaf or hearing parents. Explores the parenting of children with
special needs and the interaction between parent and infant.
National Deaf Children's Society (NDCS)
Parenting a deaf child: parenting tips
NDCS, 2005
Parents share practical advice on various issues about bringing up a deaf
child.
Schwartz, Sue (ed)
Choices in deafness: a parents' guide to communication
options (2nd ed)
Woodbine House, 1996
ISBN: 0933149859
Outlines some communication options and contains many personal stories
of parents' and children's experiences learning to communicate.
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CD-ROMs
National Deaf Children's Society (NDCS)
Parenting a deaf child
NDCS, 2004
Parents share practical advice on various issues about bringing up a deaf
child.
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Articles
Archbold, Sue M ... [et al]
Outcomes from cochlear implantation for child and family: parental
perspectives
Deafness and Education International 2008, Vol 10 (3),
p120-142
Parents of 101 children who had received cochlear implants were surveyed
to discover how well the parents felt the implants had helped their children. This
article reports the findings from the responses.
Brown, P Margaret & Remine, Maria D
Flexibility of programme delivery in providing effective family-centred
intervention for remote families
Deafness and Education International 2008, Vol 10 (4),
p213-225
Study of professionals and families involved in family-centred support
and how the quality and equity of service is affected by this approach.
Ingber, Sara & Dromi, Esther
Demographics affecting parental expectations from early deaf intervention
Deafness and Education International 2009, Vol 11 (2),
p83-111
Looks at the characteristics of the mothers of deaf children in relation
to their expectations for early intervention.
Loots, Gerrit; Devisé, Isabel; Jacquet, Wolfgang
Impact of visual communication on the intersubjective development of
early parent-child interaction with 18 to 24 month old deaf toddlers
Journal of Deaf Studies and Deaf Education Fall 2005,
Vol 10 (4), p357-375
Study of the varying communication styles used between hearing and deaf
parents and their deaf children.
http://jdsde.oxfordjournals.org/
Moore, Jo
When you know you're right
NDCS Magazine Winter/Spring 2007, No 4, p18-21
The story of one family's experience of making educational choices for
their daughter who is deaf and has multiple disabilities.
Porter, Ann & Edirippulige, Sisira
Parents of deaf children seeking hearing loss-related information on
the internet: the Australian experience
Journal of Deaf Studies and Deaf Education Fall 2007,
Vol 12 (4), p518-529
A study of the ways in which parents of deaf children use the internet
to gather information on deafness.
http://jdsde.oxfordjournals.org/
Sutherland, Jane; Remine, Maria D; Brown, P Margaret
Parent and professional perspectives on the Western Australian infant
hearing screening program
Deafness and Education International 2008, Vol 10 (3),
p168-188
Views from parents and professionals on the effectiveness of the screening
process and the subsequent services provided.
van Unen, Aleida
Parents' choice for cochlear implants and biculturalism
Deaf Worlds 2007, Vol 23 (2&3), pS161- S164
Hearing parents of a deaf child describe how they have tried to allow their
child who has a cochlear implant to make the most of his hearing and his
deafness by encouraging use of sign language in certain situations and
part-time attendance at a deaf school.
Wallis, Delia; Musselman, Carol; MacKay, Sherri
Hearing mothers and their deaf children: the relationship between early,
ongoing mode match and subsequent mental health functioning in adolescence
Journal of Deaf Studies and Deaf Education Winter 2004,
Vol 9 (1), p2-14
Explores the impact of communication choices on the mental health of deaf
adolescents.
http://jdsde.oxfordjournals.org/
Watson, Linda & Swanwick, Ruth
Parents' and teachers' views on deaf children's literacy at home: do
they agree?
Deafness and Education International 2008, Vol 10 (1),
p22-39
A study to investigate the views and beliefs of a group of parents of young
deaf children and the teachers of the deaf who work with them.
Watson, Linda M; Hardie, Tim; Archbold, Sue M; Wheeler, Alexandra
Parents' views on changing communication after cochlear implantation
Journal of Deaf Studies and Deaf Education Winter 2008,
Vol 13 (1), p104-116
A questionnaire was sent out to families of all children given a cochlear
implant at a particular centre asking about communication choices and strategies
since the cochlear implantation.
http://jdsde.oxfordjournals.org/
Young, Alys
Factors affecting communication choice in the first year of life: assessing
and understanding an ongoing experience
Deafness and Education International 2002, Vol 4 (1),
p2-11
Originally an address given at an NDCS conference. Looks at the idea
of communication choice for families, the influence of professionals around
them and how this ongoing process works.
Young, Alys ... [et al]
Informed choice and deaf children: underpinning concepts and enduring
challenges
Journal of Deaf Studies and Deaf Education Summer 2006,
Vol 11 (3), p322-336
A report on the first stage of a study about informed choices for parents
of deaf children.
http://jdsde.oxfordjournals.org/
Young, Alys ... [et al]
Issues and dilemmas in the production of standard information for parents
of young deaf children: parents' views
Deafness and Education International 2005, Vol 7 (2),
p63-76
Explores the provision of good information to parents of children who are
deaf looking specifically at a draft document devised by NDCS for the Early
Support Pilot programme.
Young, Alys & Tattersall, Helen
Parents' of deaf children evaluative accounts of the process and practice
of universal newborn hearing screening
Journal of Deaf Studies and Deaf Education Spring 2005,
Vol 10 (2), p134-145
Study of parents' perceptions of the universal newborn hearing screening
procedure. Parents interviewed had babies who were identified as
having a hearing loss during the screening process.
http://jdsde.oxfordjournals.org/
Young, Alys & Tattersall, Helen
Universal newborn hearing screening and early identification of deafness:
parents' responses to knowing early and their expectations of child communication
development
Journal of Deaf Studies and Deaf Education Spring 2007,
Vol 12 (2), p209-220
A study comprising of interviews with parents of children who were correctly
diagnosed as Deaf during the first phase of the newborn hearing screening
programme.
http://jdsde.oxfordjournals.org/
Young, Alys; Gascon-Ramos, Maria; Campbell, Malcolm; Bamford, John
Design and validation of a parent-report questionnaire for assessing
the characteristics and quality of early intervention over time
Journal of Deaf Studies and Deaf Education Fall 2009,
Vol 14 (4), p422-435
Results from a questionnaire to parents on the quality of multiprofessional
early intervention following identification of deafness in young children.
http://jdsde.oxfordjournals.org/
Zaidman-Zait, Anat
Parenting a child with a cochlear implant: a critical incident study
Journal of Deaf Studies and Deaf Education Spring 2007,
Vol 12 (2), p221-241
A study of the experiences which helped parents of children who have received
cochlear implants.
http://jdsde.oxfordjournals.org/