Event for Families of Newly Identified Children who are deaf or hard of hearing

with NDCS

Held on Saturday, 26th April 2025 in Edinburgh

Course evaluation summary

Number of Participants: 9 Families (17 parents)
Number of Respondents: 8

Before we get started, please tell us what you were hoping to get from coming along:

Meeting other families with kids with hearing loss. More info about hearing loss.
A better understanding of what my child and other families are experiencing.
Information (especially on technologies). Understanding of lived experience.
More of an understanding of deafness.
Become more aware of tips/tricks. Meet other families.
To gain information and learn more about what NDCS does and different aspects of hearing loss. Be able to talk about my own journey to others and listen to their journey.
Meeting other families in the same situation, who are more local. Deeper understanding of how to best support our son and what paths there are and choices we'll have to make.

Pre-event Check in:

I understand my child's hearing loss = 3.4; I have enough information to know which support might be useful for my child and I know how to access this support = 4; I understand how to support my child's developing communication = 3.9 Where 1 = Strongly Disagree, 5 = Strongly Agree

 

What didn't work so well, what was missing?

N/A All great
Nothing, really good event.
It was honestly brilliant.
Everything was perfect.
It was brilliant – such a success! *
Example of management plan.
The informed choices session dragged.

What worked well and did I get what I hoped to from the event?

Found today to be very informative and reassuring.
Getting to speak to other parents. Getting different perspectives and information on resources.
I really liked hearing from deaf person and the 2 Mums. Good to hear other parents asking questions and know they are feeling the same things.
Really great day. Very informative and educational. LOVED the creche as it meant one less worry.
We found out about the genetic side of hearing.
Great to find out more about assessment and meet other parents. Hearing from deaf person/parents.
I thought the event was excellent. It was extremely helpful for me to learn about different aspects of hearing loss and speak to people and hear their stories. Extremely brilliant event!
Really useful sessions on cochlear implants, assistive tech and how to advocate for our boy.

Something I will do as a result of the event...

Be an advocate for our son and push for the best care.
Look into radio aids.
Do more Ling sounds, don't be too hard on ourselves, ask more questions.
So much! Looking at BSL, talking to our Local authority. Improving our child's headband for hearing, changing my mindset towards 'deaf', ie, it's not something to be fixed.
Try to keep hearing aids in longer.
Be more proactive with audiology.
Attend more of these events.
Ask for a management plan!

Is there anything else you would like to tell us?

Thank you, we feel more knowledgeable now
Just really enjoyed it. The facilities were great, the speakers were fab – Brian is so well informed and knowledgeable. Would highly recommend.
Thank you so much. (3 responses)

How did you hear about this course?

NDCS: 2
SSC: 1
Education contact: 1