SSC/BATOD Scotland Webinar: Auditory Neuropathy Spectrum Disorder
Presented on Wednesday, 9th March 2021
Presented on Wednesday, 9th March 2021
Number of Participants: 165
Number of Respondents: 76
Not particularly but reassuring to know I am on the "right track". My support to parents is inline with "good practice".
Will enable me to look at referral documents with greater confidence.
I would be able to have a fuller discussion with parents about the implications.
more handout or link to website for more information.
Not really, this does not fall within my clinical remit, I just wanted to update my knowledge.
Ensure I have access to to the early history of new referrals. Continue to work in a multi-disciplinary way but for those children most at risk develop closer collaboration with audiological services to monitor child's development through observations/tests.
I am now more aware of the need to support parents in how they communicate about ANSD to other family members.
Has increased my awareness of new things to look for.
Yes. I will know how to guide parents re ANSD. THAT does mean supporting them in uncertainty at times. I find it helps to say let's proceed with faith, giving these children appropriate experiences, and monitor closely so that if there's something we need to change, we do so with minimal delay.
I have gained a fuller understanding of ANSD and will use this particularly with regard to advising/supporting mainstream staff and discussing with my ANSD pupils.
I understand much more about aetiology and possible outcomes so will be able to counsel families more effectively.
Research ANSD further.
More to consider in referrals and diagnosis.
Yes - be better able to support parents.
I will not compare ANSD to other types of hearing loss when talking to parents!
Be more confident when discussing with colleagues or parents.
Better understanding of the potential nature of ANSD and how to support CYP & families.
Have greater awareness of discrepancy between audiogram and speech perception results, pointing to possible ANSD. Will undertake further reading on the subject.
I will do further research.
I am now much better informed about ANSD and how this is a spectrum, and every child is different.
Feel more confident when working with health colleagues and in planning support.
Consider aetiology more and the wider patient picture when managing ANSD.
Further reading into this area, discuss with colleagues about their own experiences
I will definitely be using the information I have learned - most importantly really appreciating how the parents are feeling on diagnosis and taking this into account in conversations (and advising this to those I line manage).
At present I don't have a pupil with ANSD.
More aware of possible causes.
Think carefully about ANSD and what it means to the families and children.
Further reading into this area, discuss with colleagues about their own experiences.
Will consider older children, who initially passed their UNHS screen, and rule out ANSD due to an aquired condition - further reading is required on this. Also need to research site of Lesion and its influence on outcome.
Further reading into this area, discuss with colleagues about their own experiences.
Revisiting work with colleagues to build knowledge and understanding of ANSD.
Information.
Some of the detail in relation to the presentation of ANSD and how to support families was particularly helpful.
The main presenter was excellent. All the researchers were very 'human' and talked a lot about the human impacts of ANSD. So useful and insightful. I was delighted to be able to listen to relevant and current research approaches to ANSD. This was an excellent session and so glad that I could join via Zoom.
Excellent use of information about ANSD.
Well Informed speaker.
Good information, clear presentation.
The speaker's passion for the subject matter, the level of expertise of the speaker and panel members and the way they balanced theory with practice. I thought it helpful that a multidisciplinary team contributed to the session.
The view that TODs should feel that they are key members of the multidisciplinary team when supportIng children, families and schools.
Kai's enthusiasm for her subject- really engaging. Also like opinions of different panel members.
Balance of info presented plus follow up questions and discussion. 2 hours was a good length for on line.
The initial presentation by Dr Uus.
Very clearly explained presentation.
The Q and A discussion with the panel.
The question and answer session with such a varied panel.
Knowing that it is a complex area with few answers yet.
The scope of the information and the broad parent centred views of the participants.
The lecture.
General update re research and testing.
Input from a range of specialists and the 'radio dials' explanation of the effects of the condition on hearing!
I found it all very interesting.
The information about different types and range of issues children might face.
Accessible language.
The discussion with the experts.
The panel discussion and live Q&A session.
It was all great information- both the presentation and questions/responses afterwards.
Clear, easy to follow and able to watch before and after if necessary.
Q&A was really useful.
The information that was given to us was outstanding and made ANSD much clearer for me as a professional.
The panel discussion and live Q&A session.
Interesting topic, that I realised I now need to know more about.
The panel discussion and live Q&A session.
I enjoyed the input from Dr Kai Uus, which was clear and detailed, yet easily accessible. The panel was also interesting.
No, it was super. Presenting online always is a challenge. It is what it is ... people understand when there are glitches.
A little technical at times for me, I would have preferred some gentler introduction to the topic at the start of the presentation.
Papers to read to back up knowledge. Other than that, nothing it was really excellent.
More research that links to sign language and ANSD. Whether children would benefit from using sign language.
Questions could have been directed at particular panel members rather than waiting for one of them to answer.
Nothing (4), I thoroughly enjoyed it and found it interesting and informative.
The audio was not always clear. Microphone protocols might be helpful which can suggest getting as close as possible to the mic on your device or investing in a dedicated mic, particularly if you are presenting or organising the event.
Less abbreviations for terms CM etc.
Would have been good if more of the questions could have been covered in Q and A section.
I would have liked a copy of the presentation.
Oddly, I found it difficult visually - The colours of presentation were quite harsh as was the lighting on some of the panelists ... I know this is because they were all in homes and offices but I ended up listening and not looking.
Case studies.
More of the medical jargon explained.
Baffled by some of the medical terminology - simplify to suit audience.
Diagram showing auditory pathway and site of legion and diagnostic test appropriate that tests for presence.
Using Zoom meant I couldn’t easily read the questions in the chat when said questions were being answered. So it was hard work following (as a deaf TOD) the thread in the question and answer session. Unfortunately as I had to use my IPad rather than the work laptop (long story) captions were tiny and short in length which was hard to read. So I missed some information and will need to find time to revisit.
A little more time for questions.
I just wanted to ask how it affects pupils with a uni-lateral loss, but I couldn't type into the chat.
Colleague/Friend: 24
BATOD: 16
SSC: 15
Line manager: 11
Universities/ToD Courses: 4
NCSE: 3
NDCS: 1
RCSLT: 1
Hearing Impaired Clinical Excellence Network (North East): 1
Information on developing language in deaf children who have EAL.
Other training re: audiology - as an SLT it's an area I wish I knew more about!
More on ANSD pleas.e
More of the same on other areas.
Deaf children with complex needs / MSI - a growing part of my caseload.
Anything relevant for Speech and Language Therapy working with deaf children.
I'm a newly qualified ToD so all subjects/topics are of interest!
Other more uncommon causes of deafness.
Ways of diagnosing Deafness and ASD- what is typical, not typical in terms of observation assessment results, behaviours etc.
Speech perception testing.
Unsure - so much has been covered this year by SSC, I applaud you!
Have already signed up for cyborg session - unfortunately cannot make success from the start one due to timing clashing with teaching commitments- 4pm slot ideal. Please carry on the good work. Would appreciate information/training on new ALD’s coming onto the market and relative pros and cons compared to established models being used, speech in noise assessments / assessments of functional listening with hearing technology / language assessments- both English and BSL / use of deaf role models/ inclusion workers etc and how to promote this / support them.
CMV and CcMV, Waardenburgs. Microtia and Atresia.
I've already signed up to your next 2 webinars on Success from the Start and Listening fatigue which look very relevant. So many topics that could be covered! A session on assessing functional hearing in complex children would be very helpful webinars are great to allow more people to join training - please do more.
I have asked to be added to any course awareness email, if this exists!
Deafness & additional disabilities. BAHA's, Teens and social/emotional well being, Improving literacy levels within deaf ed, Deaf children with SLI's.
Collaborative working with S<.
Genetic causes of deafness/deafness and complex needs/Down Syndrome and deafness/Brainstem implants.
More sign language input for younger children when they are diagnosed 'deaf'. This would help with language deprivation from getting worst in later life.
CMV.
Let me know of any VTOD topic/refreshers including 0-3 deaf babies.
Audiology refresher course, assessment of language development and a focus on supporting deaf pupils in a mainstream setting both in terms of educational support and providing advice to staff.
ASD and hearing loss.
Auditory Processing Disorder.
As I am new to the service, all information and support is much appreciated.
Testing functional hearing in schools and speech acoustics.
Case studies of how some different hearing loss cases are managed outside of the clinic.
Have already signed up for cyborg session - 4pm slot ideal. Please carry on the good work. Would appreciate information/training on new ALD’s coming onto the market and relative pros and cons compared to established models being used, speech in noise assessments / assessments of functional listening with hearing technology/ language assessments- both English and BSL / use of deaf role models/ inclusion workers etc and how to promote this/ support them.
Update on APD and how the brain processes sound. Follow up to SSC webinar on Note taking to include how to access subtitles on different devices, using Live transcribe etc.
I would be grateful for anything of the same quality as this webinar.
How would you rate the webinar technology? 4.5/5
Don't worry about the tech it all panned out fine. What was important was the content. Excellent.
Very good.
All good.
Excellent use of webinar when everyone's camera and voice is switched off.
No it was very good.
Easy to log on.
Technology worked well but on occasions there were interruptions from participants which were distracting.
Use of dedicated mics for presenters and organisers.
The subtitles were very small and fast.
All fine.
Everything ran very smoothly.
It was good to see signing
Videos of panel and presentation slides clear. BSL interpreter in presentation (excellent choice) just hard to follow clearly as a bit jerky - but that could be due to my internet. BSL interpretation clarity in question/answers fine. Really it was just keeping up, with it all as I really didn’t want to miss anything as the information was so good from what I could understand.
No problems.
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